Category Archives: Caregiving

What Follows Is

photo of man leaning on wooden table

Caregiving is a spectrum of events. It would be great if it was just a one-and-done event, but it turns out to be a wee bit more complicated.

We are already familiar with the start. That often, defining moment that signifies the start. A sudden onset of illness or otherwise dramatic change in a person’s lifestyle. Cue the management of crisis, whether one is ready for it or not.

Then comes the daily challenges of caring for another that can stretch on for years and sometimes across great physical distances.

With the eventual passing of the loved one, there are final arrangements to be made and executed, but “final” is a misnomer.

As with any life-changing event (traumatic, if you will), there is personal homework that follows as we, the caregivers, digest all the experiences that occurred.

Our work is still not quite done, so pull up your grown-up underwear one more time and step off the ledge.

We are not finished learning.

Strange Conversations

man people woman art
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Some conversations can take place only after events have resolved. Put less delicately, the other person must be dead for us to say the things we need to say.

Yep, I still talk with the dead. Quite often, too.

There is much to be learned from these conversations.

In Dad’s case, our father-son relationship underwent an amazing evolution, much of which I have shared in these posts. These changes, however, did not stop with his funeral.

Part of the grieving process is to reflect upon the relationship with the one who passed. Remembering events and conversations that stayed with us over the course of the relationship. Some good. Some less so.

First time events, like road trips with Dad and the first photograph he allowed me to take, feel warm and cozy. Then, also realizing what a selfish SOB he could be, all starts to paint a thorough picture of him as a person.

Stepping away from my wounded feelings about the past allows for forgiveness and gratitude for that person who turned out to be fully human, like the rest of us.

The past, as I have found, can be a help to visit, but you probably do not want to unpack your belongings there. Like a good episode from the Twilight Zone, the past is not what it seems to be. The past can never give you all of what you need to live in the present.

Stepping Through the Door

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We all learn lots about ourselves and the world in the course of caregiving. Put more succinctly, we grow.

We stepped up when we did not want to, and we learned to thrive. After the passing of our loved one is when the lesson of courage comes home. After the passing of our loved one is when the light bulbs of inspiration pop on.

Having these internal conversations and doing the homework of self-reflection shows us the person we have become. We are changed. We are different from who we were before events happened.

We stand straight and even use our real name when in public. We are authentic and proud of it.

While I do not know if I will ever get beyond my seeking my father’s approval, I feel he might just be proud of the me I am today. No longer the son looking up at him but the son standing next to him.

Coming full circle in a relationship feels funny. Coming full circle on a relationship feels right.

A New Year

As we sit on this cusp of a new year, my hopes for a less tumultuous and more constructive time are shared with all.

May peace find you and your loved ones this season and always.

“But there was a special kind of gift that came with embracing the chaos, even if I cursed most of the way. I’m convinced that, when everything is wiped blank, it’s life ‘s way of forcing you to become acquainted with and aware of who you are now, who you can become.”― Jennifer DeLucy

Caregiver Authenticity and Role Modeling

brave doctor in flying superhero cape with fist stretched

One of the things that I have found most attractive about caregiving is how I perceive caregivers. When I was first joining the ranks, I discovered that caregivers were of all ages, came from all walks of life, and arose from any cultural background imaginable. They were distinctive in the air of confidence they demonstrated. Not the cockiness or outright arrogance that is so popular these days, but a calm assurance that made me feel comfortable in their presence.

They were quiet. A particularly kind of dark quiet. The kind you value in a friend and dread in an opponent.

They welcomed me to their ranks without having to demonstrate any worthiness. To an observer outside, we were just different folks chatting in waiting rooms of hospitals and doctor’s offices, but a torch was being passed to the next generation. They knew I was wholly unprepared for what was coming and did what they could do to soften the shock. The reality is that the genesis of a caregiver is a highly personal series of events. There is no preparation. All we can do is to be there for one another.

Sometimes just being with one another is the best training one can receive.

My Heroes

woman on black folding wheelchair
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I must confess, as if the preceding did not already demonstrate, I am enamored of caregivers. It is not entirely hero worship. We are first and foremost human beings (foibles and all). Nor are we superheroes come to save the day.

Caregivers were and are just awesome people. Like a good friend about whom you know all their weaknesses and mistakes, yet you will want them at your back in a dark alley any day.

I find caregivers to be role models in a world where we badly need positive role models.

(Where did all the good role models go?)

Remember? Those individuals who struggled to do their best with what they had at hand. The people who possessed the strength of character to admit when they make a mistake. To not make up juvenile excuses for failure.

To persevere.

To lead.

Authenticity

In many respects, I think caregivers’ model some of our finest nature as human beings. No pretense or political camouflage. Just honest.

Caregiving (substitute “being an adult”, if you like) constantly teaches. We never arrive at some expert level where there is nothing new to discover. We are forever a humble student.

Errors along the way produce beautifully teachable moments – especially when we allow our arrogance to guide us and we do something so soundly stupid that we are reminded of who and what we really are. Human.

It is this authenticity that grounds me.

Caregivers are courageous enough to blaze personal examples without concerns for conformity or embarrassment. We are the first to step towards the problem.

We could likely be good targets for today’s cancel culture, though very few want to do what we do. We likely would not care anyway.

Indifference to hurt feelings is part and parcel to caregiving.

Score-keeping

scoreboard
Image by HeungSoon from Pixabay

Authenticity of character references the audacious nature of human beings in difficult circumstances. Personal losses and triumphs are just points along a spectrum for the caregiver.

We have a job to do (caring for others) and we will have to get back to you on your narrow concerns. Later.

Ultimately, it is actions that matter. Words, whether shouted, recited, or spoken, do not carry the same weight as doing. Caregivers give to the world in what we do. We may lose on the total score of things to ingratiate oneself to a group, but that is okay. We were not really concerned with keeping score anyway.

Popularity and the Caregiver

cheerful diverse friends demonstrating thumb up gesture

The irony of caregivers’ personal popularity can get a little thick at times. At a casual glance, one could think that helping others in need would be a noble and well-respected avocation. Society values the care of the unfortunate, right?

Sometimes, however, this messenger of accountability and assistance is figuratively shot at sunrise.

Carrying the Message

If anyone thinks it could be a cool job to care for another unable to care for themselves, let us dispose of that thought right now.

As I have mentioned in these posts, the “job” of caregiver is challenging. A footnote to that observation is that besides having to make difficult decisions, delivering on those decisions makes us unpopular with loads of folks.

From guiding the loved one away from assorted hazards (“Let me cook that for you”), to advocating for the loved one with vendors, the healthcare system, etc., we learn to say “no” any number of ways to a whole lot of people.

When it comes to becoming decidedly unpopular, family is the one group that has its own level of hell. People that you grew up with will try to leverage that common past to get what they want concerning the loved one under care. (“Of course, Dad can still drive! All those accidents were obviously the fault of those other drivers.”)

Especially with family, there is no winning solution to doing what’s best vs. what others want you to do.

Get used to it.

The Truer Nature of Things

woman sticking out tongue
Image by Engin Akyurt from Pixabay

While all of these points of friction and learning experiences sound unique, the reality is that they are all a reflection of the human nature we all share. Managing stress between people, along with the more practical matters of caregiving, is not special. Personally, I think we categorize these challenges as unique to better organize our thoughts and emotions in the matter.

It is all okay.

Pop culture and social media tend to deny facts we wish to avoid. From aging to role changes with the loved one, caregiving is about the things that go bump in the night. Scared and courageous at the same time, caregivers venture into these depths of unpleasantness to answer a higher calling.

Not everyone is up to those levels of honesty.

Truth

women wearing white long sleeves
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Social media has derailed our awareness and interactions over the years. Expectations of popularity will likely be dashed when one accepts the responsibilities of caring for another.

Making the hard decisions does not often come with creating bunches of friends. In fact, it is usually the opposite.

It is a good kind of loneliness, though. Not morbid and all-consuming but a warm place of contentment with what you have and what you have accomplished. No regrets because you did the best you could with what you had at hand.

Not everyone can say that.

As for the popularity contest called modern life, all those fluffy things mean nothing. We do not hate status seeking, we just do not care. Give me something of substantial importance in life any day.

Like the smile of a loved one.

Dying of Embarrassment

woman covering her face

Is it possible that some of the angst we see in the media these days are people who went with the favored political winds a few years ago and now are facing up to the idea that they picked the wrong horse? With all the emotional gusto of a preadolescent person decrying the trauma of a social gaff, are people dying of embarrassment?

Of note in recent years has been a general decline in civilities among people, including a concerning lack of character and integrity of leaders.

Empathy Abuse

A personality trait that I have come to regard as a two-edged blade is empathy. That ability to put oneself in the shoes of another to better understand them and their actions.

embarrassed person being bullied by a man in white top
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Empathy is a “soft skill” that requires a certain amount of personal vulnerability to access successfully. In our caregiving mode, this ability to relate to the human needs of another is often what brought us to this situation. We relate to them on a personal level, and we seek to respect and understand them during difficult times.

With bullying behaviors that have become so much more common in recent years, the bullies seemed to have been on the hunt for more people to push their demands of conformity. Political correctness on steroids.

Empathy can easily be mistaken for weakness because the empathic individual exhibits natural helpful tendencies. Empathic people are not noted for being confrontational and tend to try to make the other person happy by relating (adopting) the other’s perspective.

The bullies abuse this helpfulness characteristic, and the empathic individuals are stuck paying the emotional bill for that abuse.

Feeling Stuck

Sensitivity to others carries can carry with it a duty to serve them as well. Empathic individuals do not wish to betray others, even when bullied. Emotional abuse, whether in the context of a personal relationship (i.e., family, spouses) or a less intimate arrangement, can often be difficult to disentangle oneself from. The abusers know of this reluctance to discontinue a destructive relationship and play on it to maintain a status quo.

Often lacking a motivating event to do otherwise, the empathic individual tends to stay where they are. Finding a way out becomes a struggle.

In much the same way as when we find ourselves up against the wall in caregiving, we do what the situation calls for, not what we prefer to do. One will not die of embarrassment if you change your response to a situation but making such a change happen is difficult.

the word resilience on pink surface
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Resilience

Tough decisions make resilient people. We all have the capacity to stand up on our own, but as with most important things in life, we also calculate the cost. Once we are willing to pay what is needed, the courage to carry on just naturally happens.

Moral decisions to not abuse ourselves or others is taking hold. The feelings of guilt are legitimate for many and belong to them. We can, however, still hold the door open for them. Forgiveness and gratitude work wonders at allowing people to mend broken relationships. Trust is a more difficult challenge and will take considerably more work and time.

Still, we must start somewhere and now is always a good time to begin.

“Anyone who isn’t embarrassed of who they were last year probably isn’t learning enough.”
― Alain de Botton

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